Navigating a Pediatric ER Visit

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Courtesy of NORD and Texas Children’s Hospital

On Thursday May 26, 2016, NORD and Texas Children’s Hospital hosted a tweet-chat regarding how to manage an ER visit with a rare disease diagnosis. Scroll down through the conversation, to find helpful tips related to topics such as; how to keep your child and yourself calm, how to communicate your child’s diagnosis with the ER team, plus encouraging words from other parents and organizations managing rare diseases.

Tweet-chat link