Andrea West – Project Specialist
Andrea is a full-time working mother of two beautiful boys. Her first son, Adam, was diagnosed with CMTC the day he was born in September, 2009. Through research on the internet, her family discovered the CMTC organization of which they eventually became members. After the 2012 conference, Andrea became a board member of the recently formed CMTC-OVM US organization. Her goal for this organization is to promote research for a better understanding of CMTC for medical professionals as well as families. Through fundraising, she hopes to be able to facilitate research and help families who are struggling to gain an understanding of these rare conditions.