The general session, held on July 21, 2018, will include informative presentations from: CMTC-OVM US President, Treasurer, Fundraising Chairperson, and Family Engagement Coordinators – Physician(s) dermatology, ophthalmology, and genetics. In addition, there will be free clinical evaluations by the attending physician(s); as well as, a follow-up consultation with our child development specialist or registered nurse.
Once again, we will be providing a supervised children’s area. Kids will be able to play, watch movies, etc., while Mom and Dad attend the general session.
The board will also be organizing a family event on July 20, 2018. We have held a family event for several years. But, last year we tried a new idea, and the organization hosted a Pool/Pizza Party at the hotel. This was so well attended, we will be doing it again this year. This time gives parents the opportunity to talk with others experiencing the same challenges. Parents don’t have to think about dinner after a day of traveling – We’ve got that covered! And, kids of all ages get to play in the pool. Please join us for this event, and be sure to check the box on your registration form so we have a head-count.
The medical advisory team is currently revising their portion of the intake registration form. Registration will be available in the coming weeks, and will be announced here on the website, in addition to all social media platforms.
Come see us in Chicago and learn the most up-to-date information about CMTC (Cutis Marmorata Telangiectatica Congenita) as well as other vascular malformations.