Welcome To The Family
How CMTC-OVM US Was Formed
In 2011, the Global CMTC-OVM US Organization was formed solely by US members. The documents were filed by an attorney to legally become a non-profit 501 (c) (3) charity organization. Click here to learn more.
Where In The World?
We invite you to participate in building our world map. The amount of information you share, and the general details of that information is your decision. Click here to learn more and to set your pin.
When facing a rare disease with limited knowledge in the medical field, we begin performing our own research. And it can be stressful searching for those knowledgeable doctors and services in your location. Our delegates are those who have already made this journey, and they are available to share their experiences. Click the image to learn who our delegates are, and how they can assist you on your rare disease journey.
Looking for information to guide you through this adventure? Our “Resources” tab holds a wealth of information, from understanding a vascular malformation diagnosis to a nursing diagnosis. Within the Let Us Help category you will find: our delegates listed by state or country, learn where VAC teams are located, download an informational brochure, and the answers to numerous questions. The More Resources category contains links to other helpful topics. Click the Resources tab in the main menu at the top of this page.
2018 Global CMTC-OVM US Annual Conference & Clinicals
We will be hosted at The Embassy Suites O’Hare Rosemont.
There will be multiple medical disciplines represented, including our elite Medical Advisory Team. Again this year, free medical consultations will be available to those wishing to participate, a supervised space for the children to play, watch movies, etc., and an organized Family Event. Click here to learn more.
“The actual state of the research is that we are inviting participation from those with classic CMTC. The study involves providing a blood or saliva sample as well as a 3 mm diameter round skin biopsy. We plan to sequence both and look for differences. ~Dr. Millan Patel
Dr. Patel’s research study is currently on hold. We will provide status updates as we receive them.
“Apprehension, uncertainty, waiting, expectation, fear of surprise, do a patient more harm than any exertion; actions bring results”