The Board of Directors is currently planning the 2016 Annual Conference. Check back soon to see where it will be located.
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In 2011, the CMTC-OVM US Organization was formed solely by US members. The documents were filed by an attorney to legally become a non-profit 501 (c) (3) charity organization; this was paid through a loan from one of our families.
From that point forward, the CMTC-OVM US Organization has been a private entity governed by no other organization. We operate by the guidance of a board of directors. And, all financial support is received through our members, donors, and fundraising projects.
The t-shirt campaign is going quite nicely. If interested in purchasing a shirt to help support a worthy cause, please click on the picture above to place your order. Check out how they change color!
July 10, 2015 – Family Day
July 11, 2015 – Annual Conference in Atlanta, Georgia
July 11, 2015 – CMTC-OVM US Board Meeting
July 25, 2015 – Fundraiser “Dancing With The Diva’s”
September 30, 2015 – CMTC-OVM US Board Meeting
October 21 & 22, 2015 – NORD Rare Diseases & Orphan Products Breakthrough Summit
Click here to read the notes from this informative webinar.
New fundraising project introduced by one of our members, Linda Clouse. Click on the beautiful bracelet that has been designed specifically for the CMTC-OVM US Organization, to order yours today.
The benefits of attending an annual conference are sometimes hard to express. You make new friends, meet those you have communicated with on Facebook, and have the chance to be reacquainted with those from the past. And the opportunity to watch the kids interact with others just like them, is unbelievable. They actually have the opportunity to realize they are not alone in the world of rare diseases.
Click here to read the full report.