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Who We Are

We are a nonprofit organization whose activities are aimed at the well-being of people who suffer from vascular malformations such as CMTC (Van Lohuizen Syndrome) and to stimulate the scientific research of such conditions. Objectives of the CMTC-OVM US organization are focused to provide our members with knowledge, medical support that can enhance their confidence and independence, and to empower them with the skills to meet their individual needs.

Building Awareness


The t-shirt campaign is going quite nicely. If interested in purchasing a shirt to help support a worthy cause, please click on the picture above to place your order. Check out how they change color! T-shirt video IMG_0409

Coming Up

January 10 – CMTC-OVM US Board Meeting

February 12, 2015 – Order deadline to have t-shirts in time for Rare Disease Day

February 28, 2015 – Rare Disease Day

March 7, 2015 – CMTC-OVM US Board Meeting

July 10, 2015 – Family Day
More info to follow later

July 11, 2015 – Annual Conference

July 25, 2015 – Fundraiser “Dancing With The Diva’s”




What Have We Been Doing?

2014 Dutch – International Member Meeting

NORD 2014

2014 Annual Conference and Family Day


The personalized hotel reservations link for the 2015 annual conference, is available until June 18, 2015. Please click on the picture below to make your reservation.


If interested in booking 3 days prior and/or post the conference date, at the same reduced rate, please call: 1-800-Marriott. You must inform the receptionist of the hotel; Atlanta Marriott Century Center/Emory Area, and that you will be joining the CMTC-OVM US Annual Conference.


The CMTC-OVM US Annual Conference preparations are moving right along. Please click on the button above to complete your registration.


Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions. Become a Member
  • Physicians – Texas

Dallas Plastic Surgery Institute

Dr. Jay Burns
9101 N. Central Expressway
Suite 600
Dallas, TX 75231