The CMTC-OVM US Board of Directors is happy to announce the annual conference will be held in Decatur, Georgia on July 11, 2015. See you there!!
Being a member gives you passage to "Members Only" content, such as: informational conference videos, photos, physicians, member directory, and more!
We are a nonprofit organization whose activities are aimed at the well-being of people who suffer from vascular malformations such as CMTC (Van Lohuizen Syndrome) and to stimulate the scientific research of such conditions. Objectives of the CMTC-OVM US organization are focused to provide our members with knowledge, medical support that can enhance their confidence and independence, and to empower them with the skills to meet their individual needs.
December 4 – JRAZZO’S Wine & Dine Fundraiser in Indianapolis, Indiana
January 10 – CMTC-OVM US Board Meeting
February 28, 2015 – Rare Disease Day
July 11, 2015 – Annual Conference
Welcome to the new CMTC-OVM US Website! Take some time to make yourself at home.
Be sure to visit the Board of Directors page and get to know a little about them.
The CMTC-OVM US Organization will be represented at two upcoming conferences; NORD in Washington DC, and the CMTC-OVM Member Meeting in Leusden, The Netherlands.
There are also currently four fundraising events being organized. Check back to read the event organizers’ reports.
The 2015 Annual CMTC-OVM US Conference will be held in Decatur, GA, on July 11, 2015. We will be hosted at the Atlanta Marriott Century Center located off I-85, just minutes from downtown. We will receive complimentary parking and shuttle service, and a guest room rate of $99/night. Visit the hotel site at: http://tinyurl.com/naruj3s
The general session will include informative presentations from: CMTC-OVM US President – CMTC-OVM NL President – Physician – Counselor/Family Educator. In addition, there will be clinical evaluations by the attending physician; as well as, a follow-up consultation with the attending counselor/family educator.
The board will also be organizing a family day, where all families can come together for a day of fun. Registration for the conference and family day will be available in January. At that time, information for your hotel reservations will be supplied.