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How CMTC-OVM US Was Formed

In 2011, the CMTC-OVM US Organization was formed solely by US members. The documents were filed by an attorney to legally become a non-profit 501 (c) (3) charity organization; this was paid through a loan from one of our families.

From that point forward, the CMTC-OVM US Organization has been a private entity governed by no other organization. We operate by the guidance of a board of directors. And, all financial support is received through our members, donors, and fundraising projects.



Building Awareness


The t-shirt campaign is going quite nicely. If interested in purchasing a shirt to help support a worthy cause, please click on the picture above to place your order. Check out how they change color!

Coming Up

May 16, 2015 – CMTC-OVM US Board Meeting

July 10, 2015 – Family Day
More info to follow later

July 11, 2015 – Annual Conference in Atlanta, Georgia

July 11, 2015 – CMTC-OVM US Board Meeting

July 25, 2015 – Fundraiser “Dancing With The Diva’s”



What Have We Been Doing?

New fundraising project introduced by one of our members, Linda Clouse. Click on the beautiful bracelet that has been designed specifically for the CMTC-OVM US Organization, to order yours today.

CMTC-OVM US bracelet

Articles of interest:

2015 Annual Conference

Dr. Joan Tamburro

Dr. Millan Patel

 Rafael E. Oliver

Conference and Family Day Highlights

conference photoFamily Day and the Annual Conference have come and gone; but, the excitement and the memories will continue as we plan for next year.

The benefits of attending an annual conference are sometimes hard to express. You make new friends, meet those you have communicated with on Facebook, and have the chance to be reacquainted with those from the past. And the opportunity to watch the kids interact with others just like them, is unbelievable. They actually have the opportunity to realize they are not alone in the world of rare diseases.

Click here to read the full report.



Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions. Become a Member
  • Dancing With the Divas

On July 25, 2015, CMTC-OVM US President Rebecca “Bec” Gallis, participated in the Dancing With the Divas celebrity fundraising  event hosted in Zanesville , Ohio. It was an excellent opportunity to raise awareness and funds for the organization. For 5 months prior to the event, awareness for our organization was supported through celebrity photo shoots, interviews broadcast on television, and billboards throughout the community.

If you wish to watch the dance Bec and her diva partner LeAnne Bader Mock performed, click the video link below. Their number begins at aproximately 19 minutes.