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Who We Are

We are a nonprofit organization whose activities are aimed at the well-being of people who suffer from vascular malformations such as CMTC (Van Lohuizen Syndrome) and to stimulate the scientific research of such conditions. Objectives of the CMTC-OVM US organization are focused to provide our members with knowledge, medical support that can enhance their confidence and independence, and to empower them with the skills to meet their individual needs.

Building Awareness


The t-shirt campaign is going quite nicely. If interested in purchasing a shirt to help support a worthy cause, please click on the picture above to place your order. Check out how they change color!

Coming Up

May 16, 2015 – CMTC-OVM US Board Meeting

July 10, 2015 – Family Day
More info to follow later

July 11, 2015 – Annual Conference in Atlanta, Georgia

July 11, 2015 – CMTC-OVM US Board Meeting

July 25, 2015 – Fundraiser “Dancing With The Diva’s”



What Have We Been Doing?

The Board of Directors have been planning the upcoming conference in Atlanta, Georgia on July 11, 2015.


The deadline to receive the reduced hotel rate is June 18, 2015.

Please click the reservation link on the homepage of the website to make your reservations.

Articles of interest:

2015 Annual Conference

Dr. Joan Tamburro

Dr. Millan Patel


The personalized hotel reservations link for the 2015 annual conference, is available until June 18, 2015. Please click on the picture below to make your reservation.


If interested in booking 3 days prior and/or post the conference date, at the same reduced rate, please call: 1-800-Marriott. You must inform the receptionist of the hotel; Atlanta Marriott Century Center/Emory Area, and that you will be joining the CMTC-OVM US Annual Conference.


The CMTC-OVM US Annual Conference preparations are moving right along. Please click on the button above to complete your registration.

Our activities are aimed at the well-being of people who suffer from vascular malformations like CMTC ('Van Lohuizen syndrome') and to stimulate the scientific research of these afflictions. Become a Member
  • Rafael E Oliver – Elite Para-triathlete

RaphaelWe are excited to have Rafael E. Oliver join us for the upcoming conference. Rafael is one of our members with CMTC, and despite his disabilities, he is a 2012 Team USA elite para-triathlete, marathoner, and swimmer. He is also the first para-triathlete from Puerto Rico to represent the USA in the Para-triathlon World Cup in Alberta Canada, winning a bronze medal. Also, he participated in the 2012 final World Cup in New Zealand, and was the first one to be a para iron-man in Puerto Rico. He is currently mentoring others with disabilities in various sports teaching them safety and independence, while focusing their thoughts towards reachable goals as they prepare for future Paralympics. His presentation will focus on coping with a vascular malformation in sports related activities. Some of the highlights will include:

  • Do’s and Don’ts
  • Nutrition and Hydration
  • Sports Minded Awareness
  • How to choose the right sport for your child while considering his/her disability

In addition to a presentation, Rafael plans to provide a swim clinic at the hotel on Saturday evening, with any interested children and adults, demonstrating exercises which are beneficial to the circulatory system and overall health.

Rafael 3            USA-Paratriathlon-LogoRafael 4